tag:blogger.com,1999:blog-3885802979303204311.comments2023-06-24T07:11:19.071-04:00Growing up with M.S.Anonymoushttp://www.blogger.com/profile/09080478913209215503noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-3885802979303204311.post-59010188535089436762022-06-03T14:06:02.400-04:002022-06-03T14:06:02.400-04:00Wher did you get off to? Will you ever blog again?...Wher did you get off to? Will you ever blog again?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-17723077616304177322016-03-19T21:29:42.758-04:002016-03-19T21:29:42.758-04:00Wow! Reading y'alls experiences is just too re...Wow! Reading y'alls experiences is just too real. I've been on disability for about 10 yrs now. I don't remember the date or even the year I was diagnosed. Unlike some people who remember the exact time Down to the minute that they were diagnosed, I'm not one of them. I've never been very good at remembering dates...can't tell you the year I met my husband, or the day I was told I was pregnant with triplets (maybe because I was in SHOCK)!!! But I know it's been about 10 years ago that I was diagnosed. My neuro talked to me about work and said it was to my benefit if I'd stop working. I ABSOLUTELY loved my job.. But the company was downsizing and they'd released my boss and brought in someone to "clean up". I was very nervous because I knew I'd been making a lot of mistakes. Mistakes that I KNEW better than to make, but because of the stress of possibly being laid off and the stress of my fatigue and stress from having to constantly look at my notes or ask my coworkers how to process something, I made a lot of errors. Some days I'd come home in tears feeling sooo freakin STUPID (a word my parents didn't like me using as a child and try not to use still because it's an ugly, hurtful word) But yeah, I felt really STUPID. I'd been doing same job for 3+ yrs and had to refer back to my notes!?! I couldn't understand it. Until I went to dr who ordered mri, who ordered 2nd Mri w contrast. 10+ yrs later and I still feel dumb at times. Esp when discussing something w my hubby and I need him to clarify something. Ughhh, I feel like a kid who needs everything explained to her! I could go on and on, but I won't right now. I was excited when I ran across this blog and hoped I could get a dialog with blogger, but I noticed she hasn't been very active lately. Truly hope she's ok. Praying for all of us affected by this terrible disease and for all debilitating diseases. Just wish I could go back to the days when i/we felt good. When there wasn't depression involved which made us stay in bed all freakin day, and when weren't in pain or experiencing brain fog and EVERYTHING ELSE associated with MS, cancer, Parkinson's,lupus......and all the other sucky diseases!!!Anonymoushttps://www.blogger.com/profile/17057062361945505130noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-76435407200320060302015-06-29T15:57:04.059-04:002015-06-29T15:57:04.059-04:00See now this is something that I'am dealing wi...See now this is something that I'am dealing with right now. I finally had to call it quits in the workforce. I've been working since i was 16yrs old. Law enforcement for 10yrs & a working for a Lab that made Cancer Medication. I had to call it quits because nothing was making sense to me anymore and to make a tiny mistake would cost the company Millions & possibly someones life. So I had to pull the plug and file. It has been a year already since I filed and I have received my first & second denial's already. Now its to go infront of a judge. My thing is I have always worked my whole life, never was lazy to not work. I would sometimes hold down a fulltime & part time job just to stay busy. <br /><br />But I sit and think WHAT IF. What if i stayed working, would my job be understanding of the way MS can sneak up on you and destroy your entire thought process along with your physical & mental process. That just wasn't a chance I want to take. I spoke with my wife and family before i made the decision. They all agreeded that discontinuing on working was the best thing for me. But really, was it? I've been playing the waiting game for the SSDI to be approved. I find it funny on how someone that is nowhere even close to where i live or has EVER met me in person or spoken to me has the authority to make the deciding decision on if I'm disabled. <br /><br />From the person I use to be to the person I'm now, is a complete 360 degree difference. EXTREMELY ACTIVE, military( 82nd Airborne) Law enforcement officer, rugby player, semi-pro football player, a fighter in training for MMA. To now someone who has to walk with a cane, can't walk more then a block without being completely exhausted, can't remember what I was talking about 5 minutes ago to just complete lack of understand to anything. But yet I'm not approved because of 1 person making a decision on what he reads on some papers. Still even those papers from my Neuro say. He's disabled and his MS is progressing. <br /><br />WHAT DO I DO?? WHY IS IT SO HARD TO GET APPROVED?? WHAT ELSE DO THEY NEED?? Putting more stress on me wondering and waiting just makes the flare ups more common. Anonymoushttps://www.blogger.com/profile/14356261638333659452noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-20434435861105218872015-06-29T15:23:50.194-04:002015-06-29T15:23:50.194-04:00Jeannine,
I read your blog I RUN. It reminded me ...Jeannine,<br /><br />I read your blog I RUN. It reminded me so much of me. Of how I feel and of how I want to so much run again. I was at my best with a 4:56 mile. Now I bet that would be in the teens. I often think and daydream of all the places I have been while running and all the places that I have ended up in. You loose yourself while running, before you know it your a few suburbs away from where you originally started. That is life, to run and not care where you end up. It is a time where all your worries and pains disappear and everything is Perfect. As i sit on my porch i see plenty of young & old jogging thru the neighborhood, I smile and think back of all the miles all the races & all the people I have met while I ran. PRICELESS, if your not a runner it wouldn't make sense to you, if you are, then you know exactly what i'm saying. Who knows, maybe a cane or maybe a walker or wheelchair. I'll get to that mile again & that peace & tranquil state of mind. Anonymoushttps://www.blogger.com/profile/14356261638333659452noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-67128806202990564152015-06-25T10:10:33.860-04:002015-06-25T10:10:33.860-04:00My son is starting his third year of college...he&...My son is starting his third year of college...he's home on summer break jow and I love it!!! BUT come August, I'll be helping him pack up his car!!! (I do love you with all my heart, John! ❤️)connie_zachhttps://www.blogger.com/profile/10669251102988850580noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-11968301527138893722015-06-25T09:51:11.637-04:002015-06-25T09:51:11.637-04:00Hi Jeannine,
I made the same choice for the same r...Hi Jeannine,<br />I made the same choice for the same reason 3 years ago. In fact, my manager, at the job at which I worked at for 27 years, told me, "Con, it's time ... time to go out on disability or you're going to end up being fired!" I was making mistakes, forgetting how to do things...it was horrible! I left there in tears. connie_zachhttps://www.blogger.com/profile/10669251102988850580noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-15339286804373017532015-06-25T09:22:05.997-04:002015-06-25T09:22:05.997-04:00Hi Jeannine,
I read your blog on the MS website (...Hi Jeannine,<br /><br />I read your blog on the MS website (http://www.mymsteam.com/about/guidelines). I'm not a runner, but I can totally relate! Pls add me to your friend group...I was unable to find you. My username is ConnieZacharkan. Look forward to reading more!<br />Take care,<br />Connieconnie_zachhttps://www.blogger.com/profile/10669251102988850580noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-16586365606369265242015-05-21T10:22:32.465-04:002015-05-21T10:22:32.465-04:00Thank you so much! Please feel free to use this po...Thank you so much! Please feel free to use this post. I hope that it brings understanding to the connection of M.S. and depression. I also it gives hope to others who are suffering. There is help out there. We just have to ask. There is no shame in asking.Anonymoushttps://www.blogger.com/profile/09080478913209215503noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-2581874271203611202015-05-19T16:59:58.404-04:002015-05-19T16:59:58.404-04:00Hi Jeannine,
I'm writing to tell you that you...Hi Jeannine,<br /><br />I'm writing to tell you that your post M.S. and Depression (http://jeannineczop.blogspot.com/2014/08/ms-and-depression.html) is absolutely spot on! We'd love to feature it on our MyMSTeam blog if you don't mind us republishing (we'd include your bio/your byline, link etc). <br /><br />Your writing is so genuine. "I feel like my body has completely betrayed me. I run, I eat fairly well, but I just cannot seem to get any control over my body and brain." <--- our readers can relate! :)<br /><br /><br />We are starting a guest blogging series to bring hope, understanding, and encouragement to people living with MS. We would also share on MyMSTeam.com and on our social media channels. <br /><br /><br />MyMSTeam.com is a growing social network for people with multiple sclerosis. We already have almost 35,000 members and 35,000 Facebook fans. If you're already on MMST, can you let me know your username? That way I can feature you AND the blogpost.<br /><br /><br />Please email me if you are interested. Have a wonderful day,<br /><br /><br />Michelle<br /><br />----<br />Michelle M<br />michelle@myhealthteams.com <br />Social Media Manager, MyHealthTeams.com - @MyAutismTeam @MyBCTeam <br />@MyMSTeam @MyCrohnsTeam @MyLupusTeam @MyCOPDTeam @MyRATeam @MyFibroTeam<br />Michelle Mhttp://mymsteam.comnoreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-61782557817432015742014-02-26T19:03:23.551-05:002014-02-26T19:03:23.551-05:00Thank you, I write from my heart and when someone ...Thank you, I write from my heart and when someone gets it things always feel better.Anonymoushttps://www.blogger.com/profile/09080478913209215503noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-89919574466013849582014-02-26T14:02:56.939-05:002014-02-26T14:02:56.939-05:00You paint an easy to understand word picture of yo...You paint an easy to understand word picture of your flowerbed. Grief, however unwelcome, visits when it pleases. We gotta get through it before we can move on. Hope your attack and it's fallout leave you in peace soon. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-87038007256836007342013-07-24T11:12:17.654-04:002013-07-24T11:12:17.654-04:00Thank You Candace! I usually feel pretty good, bu...Thank You Candace! I usually feel pretty good, but lately I just feel really blah. My girls are growing up and I feel like time is just slipping through my hands sometimes. I wish you all the best of luck. I hope you find what you need also. Remember you are in charge of this. Your Neuro is the most important doc in your world right now and you need to have a great relationship with him and his office staff. Luckily I have that. Anonymoushttps://www.blogger.com/profile/09080478913209215503noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-55719855514245654432013-07-12T09:15:01.382-04:002013-07-12T09:15:01.382-04:00I almost forgot, your haircut is super cute!I almost forgot, your haircut is super cute!Candace Clarkhttps://www.blogger.com/profile/01563685006849603145noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-32019298169763788392013-07-12T09:13:17.172-04:002013-07-12T09:13:17.172-04:00This comment has been removed by a blog administrator.Candace Clarkhttps://www.blogger.com/profile/01563685006849603145noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-40688954651710653042013-03-17T15:44:02.742-04:002013-03-17T15:44:02.742-04:00I use my a visual warning to others that I'm n...I use my a visual warning to others that I'm not a blazing drunk in the grocery store at 9am... 'There's a problem here, but look, what's yer excuse' ;)<br />And I like the security it gives when I need something to lean on. Rock that cane, miss.Darlahttps://www.blogger.com/profile/11027660091790552153noreply@blogger.comtag:blogger.com,1999:blog-3885802979303204311.post-8611953744510743022013-02-14T14:09:27.698-05:002013-02-14T14:09:27.698-05:00I found your blog from the Women's Running Com...I found your blog from the Women's Running Community FB page and was reading through your posts. I don't know you but I feel so sad reading this post. I want to reach through the monitor and give you a hug. I wish I could say I completely understand but I don't have MS and don't know the daily struggle. I do know how hard it is to get into the Mom's inner circle. My kids are still young but I can't even get to the edge. I think the only thing preventing me is, well, me. Maybe I don't really want that. I want to be there to support my kids in what they do, support their friends that are also involved and it wouldn't hurt to make some friends of my own along the way. I will, and in my own way, whether it is within the inner circle or not.<br /><br />Life can be so overwhelming. Family, work, spouse, etc.—all demanding time, attention, love and while this seems simple (it is) the process of balancing all of that is not. Its so easy to feel like a failure but remember that you are not! I loved reading your Lent post and hope that you are feeling better now. :)<br /><br />CaraAnonymousnoreply@blogger.com